Diaversary Day!

So a few days ago, we celebrated my sons “Diaversary”. If you do not know what this is, then you are blessed! If you do know what it is, feel free to comment your diaversary date so I can send you some celebratory stuff on the date! But any who, it is the anniversary of his diagnosis of Type 1 diabetes (T1D).

I had plans to make it super special. Low carb cake, balloons, rides to places he enjoys. However, the entire world is shut down right now (thank you Covid-19). So my plan was a stay at home party of five. THEN we woke up and realized his insulin pump had shut off last night…that’s not good. Apparently his sugar spiked right at bedtime due to a small head injury after dinner (no worries, it only bled a little!). That sugar spike caused his alarm to go off all night. Which then led to his battery going from 50% to 0% in the middle of the night.

Talk about a long night for everyone, except him. I started using some essential oils on my children and now they can literally sleep through anything. I have even moved a dresser while tripping over toys inside their room, and no one budged! (Thank you Peace & Calming) Those oils are truly a life saver for a mom of a diabetic child and a toddler who share the same room. the alarm wakes the toddler and then no one goes back to sleep.

So anyway, back on task Stephanie! His insulin pump died, which causes his CGM to disconnect from his pump, and it stops reading how much insulin he has in his pump. It kind of snowballed by 7 that morning. All before I had even consumed coffee! I was overwhelmed, exhausted, and done with the day. So I did what any mom would do, I did the next right thing. (hello Frozen 2 song lyric).

We reset his pump, there was no saving that CGM connection, but luckily it stays connected to my phone too. So at least we have that. With him reconnected and that crisis kind of avoided, I sent the kids to the sand pile. I oiled up with some Stress Away and then joined them. BUT the craziness of this day was not yet over! My son meets me at the door holding his pump and attachments. his insulin pumped had gotten snagged on something and ripped completely out.

Luckily I had just put on Stress Away lol. So, we unhook everything, fill his pump up with more insulin, reinsert it into his little body, and try this outside thing one more time. Yall! I was at my limit of the day by this time. And it was only noon. I could feel the tension in my body, I could feel the shortness in my answers to the kids, I was not being the best version of myself.

Then my son did an amazing thing. He laid hands on me and started praying for me. My humble, wonderful 8 year old child prayed for my heart, my happiness, and for Jesus to help me to feel His love for me. As Wyatt was praying, my four year old son, Mason joined in. With both of my tiny children laying hands on me and praying for my sanity, I felt the layers of stress begin to melt away.

God began to minister to my heart and mind through the actions of these tiny humans. It was a humbling experience. And yes, I ugly cried. Hard. My children are the best blessing I ever received from God. They are truly faith builders and love connectors. Pure. Set apart. I learn about love and acceptance from them every day. Through the faith of my children, I was brought back to a place of perfect peace once again.

So, we finally celebrated his Diaversary in true us style, by swimming all day long and playing with baby chicks. By the time my husband got home with my surprise of chocolate covered pretzels, I was my normal happy, healthy self. We wished my son a happy 1 year Diaversary, told him all the ways we are proud of him and love him, then explained God’s love for him. Wyatt truly is a remarkable kid, his love for God is incredible and we are ready to conquer diabetes for another year.

God Bless

Grace Revival Homestead

BTW! If you are interested in any of the oils I mentioned, shoot me an email or comment below. I’d love to help other mommas find peace in the night and relaxation during the day!

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“I Wish I Never Got Diabetes”

Says my son. I hear this statement most days of the week. Sometimes multiple times a day. It breaks my momma heart, even though I do agree with him. I also wish he had never gotten diabetes, however I refuse to let any of us walk around with a victim mentality. So I turn it around with positivity and an extra low carb snack to ease his pain. He is beginning to be burned out with this season of life, and I don’t blame him. It’s just plain hard.

One day Wyatt asked me why he had gotten diabetes and why God hasn’t healed him yet. Talk about a hit in an already sore spot in my heart. I had asked God these exact questions already. Sometimes in frustration, sometimes just with a sheer curiosity that is common with us humans. But God had never given me an answer…..so i sighed, took a deep breath, said a silent prayer for God to speak through me to my sensitive child then spoke what came to my heart. It was in that instant that God answered my prayer through me. He spoke to my son’s tender heart and it warmed mine right up. Its reminded me that God never leaves us or forsakes us. This disease wasn’t a form of punishment or proof that God wasn’t paying attention to my family. It’s my son’s testimony. Whether God miraculously heals him or it is His will that Wyatt walk out his life with Type one, we dont know. But we do know that God is still good and He still loves us. He has been here with us comforting us the entire time.

So if you find yourself walking through a battle that seems endless, just know that God is with you. He will never forsake you. He loves you and He will walk through the fire beside you. The anchor holds, in spite of the storm!

With All of God’s Blessings,

Stephanie Smith

The Highs and the Lows

For the last few weeks, we have really been struggling to keep my sons sugar in a “good” zone. First we struggled at night. He would drop 6-7 times a night, every night. Talk about me being a zombie for days on end. I was EXHAUSTED! Now that we have it almost under control at night, it is unsteady during the day! Meals that he has ate the entire time he has been diagnosed now send him to a shockingly high number. When just last week that exact same meal to insulin ratio sent him plummeting to an all time low. Let me just say that type 1 diabetes is frustrating and exhausting and just defeating sometimes.

#HONEYMOON PHASE

My son is currently in the honeymoon phase of T1D. Now, don’t get confused here, there is nothing fun about this honeymoon. It means that his pancreas still sometimes produces insulin. So he eats, we dose his insulin for the food, and BAM his pancreas works right and also gives him insulin. So we find him plummeting very quickly and having him shot gun apple juice…..insane right?! Then there are times that his pancreas doesn’t work at all, like today. So he ate the same breakfast that he has ate all week, but today, his insulin does nothing for him. He skyrockets to a very scary number and all we can do is dose him again and wait the two hour window for his medicine to take affect. Type one diabetes is stupid.

ITS ALL A WAITING GAME TO THE COMPLETE DEATH

of his pancreas, that is. So, we sit and wait on his pancreas to fully die out. Hoping the day comes sooner rather than later. Living in this Russian roulette of insulin or not is really hard for his little 8 year old body to take. And it breaks my momma heart to pieces to watch him suffer like he does. Plus living with the stress of unknown long term effects of his sugar roller coasters. I’m not saying it will get better once that day comes, but I can hope that maybe, just maybe, it’ll be a little smoother.

If you know someone with T1D or have any tips or tricks of the trade, please send some my way! I’ll take all the help God brings to me!

With All of God’s Blessings,

Stephanie Smith